Hey Emily.... I just wanted to introduce myself .....online. I found your blog a while back through the CFhusband blog roll, and I've been keeping up with it since. I have a two and a half year old daughter with cf, and we live in Southern California. I remember seeing you speak at one of the CHOC family education days a couple years back, and Casey has mentioned your name a couple of times. I just wanted to let you know (as if you didn't already) that you are doing some amazing things for CF, and it is really exciting to watch it! FOAM magazine bought my husband a ticket for pipeline to a cure (he works in the surf industry), so he could take some pictures for their magazine, and of course that means I'll be going with him. I'm so excited to go to this event! Maybe I'll see you there!...........Holly.
My name is Emily. I live my days with adventure, fun, and challenge...I'm an adult with Cystic Fibrosis with a heart for serving for God, raising awareness for CF, love for people, and can you tell, I love the beach?
Join me as I continue to fight against CF, and live each day to the fullest. I love my life and I love sharing it, because each day is truly a gift!
1 comment:
Hey Emily....
I just wanted to introduce myself .....online. I found your blog a while back through the CFhusband blog roll, and I've been keeping up with it since. I have a two and a half year old daughter with cf, and we live in Southern California. I remember seeing you speak at one of the CHOC family education days a couple years back, and Casey has mentioned your name a couple of times. I just wanted to let you know (as if you didn't already) that you are doing some amazing things for CF, and it is really exciting to watch it! FOAM magazine bought my husband a ticket for pipeline to a cure (he works in the surf industry), so he could take some pictures for their magazine, and of course that means I'll be going with him. I'm so excited to go to this event! Maybe I'll see you there!...........Holly.
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