Today was a great day! I met with my doctors and the entire CF team, (see this post for previous info). They talked with me about how I'm doing and also we discussed a 'plan' to hopefully get me home soon :)...
Health Update: I have been here for 5 days and this is about when the medications should start to work. I am not feeling any better, really, I am still pretty short of breath, coughing a ton and mostly exhausted because my body is working so hard to fight this infection. I am also, unfortunately, having a lot of digestive problems and my food hasn't exactly been feeling too good in the tummy (enough said). All that is to say, I still have a few weeks ahead of IV meds to kick this infection and get back to my normal stamina, breathing, and living an active life. But, I think I'm starting to see little improvements along the way and being here has really helped me to rest as I allow others to take care of me.
Some Good News: If I start to make some improvements in the next few days and I will do some more tests to make sure my stomach and digestion are all working ok, my doctor is willing to let me go home and continue treatment there, maybe by the end of the week :)...yay! We will see, I will let you all know.
Prayer/Support: For now, I ask for prayers that my body will start to fight the infection with the help of the meds, that I can get lots of rest. Pray that the meds will work hard to kill the bacteria, and that I can have minimal side effects to them. Also, pray the issues with my stomach will get worked out, it's no fun :(.
After seeing my docs today, I feel encouraged that being here to immerse myself in health care for my body is really helping! This hospital and my doctors are incredible, they have done a great job taking care of me and still trying allowing me to live a semi-normal life (going outside, walking, little exercising, eating, resting). I am so encouraged as dear friends and family have surrounded me with love, phone calls (even if I don't return them know you are loved), emails, and prayer...My spirits are up as I know I'm not fighting this battle alone. Both God and people are walking with me in this, I feel so overwhelmed with family of support around me, I cannot thank everyone enough.
Love to all,
ok...so granted this isn't the most flattering picture, but I wanted to say hello with my face, not just words on a blog :)